Calendar | For Your Patients | PHA Main Site | Contact Us | About Us | Not a registered user? Sign up here.

Resource Library

Pulmonary Hypertension Comprehensive Care Center - Spreading the Word

Jocelyn Havener

Amy Heidenreich

Lauren Hulett


  Sign in to add a review

Leave a Comment

Conference: 2017 PH Professional Network Symposium

Release Date: 10.06.2017

Presentation Type: Abstracts

File Download: 2017 PHPN Abstract 1042

Download Adobe Acrobat

Abstract presented at the 2017 PH Professional Network Symposium held in Bethesda, MD on October 5-7, 2017


Evaluate the referrals received at our center to identify the changing trends among our patient population since our accreditation as a Comprehensive Care Center including time to referral, time to treatment, functional class and diagnosis at referral.


It is well known in the PH community, oftentimes, by the time patients are referred to a PH center, they are often late into the disease process. By evaluating our referrals over the past three years (1-year prior (2014), the year of (2015), and the year since (2016) accreditation) we hope to identify positive trends, as well as those gaps that could potentially be addressed by education of our current patients with the importance of follow up, education within the surrounding communities including those physicians who are encountering these patients; about what the disease is, how to treat, when to refer etc. We have tracked patients by their age, diagnosis, who group status, functional status at referral, if they were started on PAH specific therapy, as well as their functional class over the past 12 months.


We have over 500 patients within our center to utilize in this historical review of data. This information is being gathered to be compared as a conglomerate data source to identify trends over the past three years individually and collectively to better serve our patients and our associate physician with whom we collaborate for patient care.


We anticipate seeing important trends over the past year as compared to two years ago, These trends will identify appropriate referrals for those with disease at an earlier functional class 2-3 more often so that appropriate treatment can be started. We also hope to see an improvement in functional class for those established patients over the past 12 months since those patients are being identified appropriately and treated in a timelier manner. Negative trends in any of the evaluated categories will be areas that can be utilized to tailor educational campaigns.


It is hypothesized that by becoming a pulmonary hypertension comprehensive care center, this is going to have a positive impact on both our center and our community. By advertising this new achievement and sharing our mission as such a center, this will bring improved awareness of the disease process as well as educate both our current patients, future patients, and community physicians of why early detection is so important to long-term survival. These trends will also help us to tailor our education within our own center to ensure general understanding among all units who may encounter this patient population and how to best customize their plans of care while receiving care within our health system.