Conference: 2012 International PHA Conference and Scientific Sessions
Release Date: 06.22.2012
Presentation Type: Abstracts
Monson A1, Pennell S2
1. Saint Xavier University Chicago IL USA
2. University of Massachusetts Amherst MA USA
BACKGROUND: Pulmonary arterial hypertension (PAH) is a chronic and devastating disease that has been under-diagnosed for many years. As research, awareness, and medical interventions in PAH have blossomed over the past 10 years, more PAH patients are being diagnosed in all age groups and living longer lives as a result. Patients diagnosed with PAH now live into their sixties, seventies, and eighties and more are being diagnosed in their later years. It is documented that PAH patients suffer from decreased quality of life and experience psychosocial problems such as depression, anxiety and increased family/interpersonal stress. Few quality of life (QOL) studies in PAH have been conducted and of those the majority have been on patients with a mean age of 50 years old. There have been no studies conducted to specifically address the older adult PAH patient.
METHODS: The aim of this study is to increase understanding of the experiences of older adults (age 65+) with PAH, and identify specific issues or needs for this subpopulation as they experience diagnosis, treatment, and daily life with PAH. Data will be collected using a validated QOL questionnaire and short, open-ended interviews about participants life experience with PAH. Patients from the New York Methodist Pulmonary Hypertension center database who meet the inclusion criteria will be asked to participate, with an estimated number of 5-10 participants. Participants will be asked to fill out a health related QOL questionnaire followed by additional open ended interview questions designed to elicit their experience with diagnosis, treatment, and daily symptoms, the emotional impact of the disease, and it’s impact on their social relationships. The interviews will be audio recorded, transcribed and analyzed using qualitative analytical software. The study design is an exploratory qualitative inquiry based in grounded theory methodology, which allows for the use of multiple types of data collection and builds on the patients’ own experiences with the goal of developing a unique theoretical construct that helps both the patient and the researcher to better understand the phenomena/experience.
RESULTS: (Study timeline) Submitted to the New York Methodist Hospital IRB March 2012
Interviews to be conducted April/May 2012 Analysis of data June 2012
CONCLUSIONS: Results & Conclusions will be completed in poster format by June 2012