As a medical professional and patient advocate, you are invested in getting your PH patients access to the therapies that are right for them. You have strategies for overcoming treatment access barriers created by insurers, but what happens when those barriers come from folks who are usually your allies – a patient’s Specialty Pharmacy?
During this webinar, you will learn how PHA and the Caring Voice Coalition have collaborated with industry to create a Specialty Feedback and Accountability Form, which can serve as a catalyst for change in the specialty pharmacy process.
You will also learn how to:
Colleen Brunetti, M.ED, C.H.C, is a PH patient and a member of PHA's Specialty Pharmacy Advisory Board as well as Board of Trustees. Colleen's personal and leadership experience brings a unique perspective to the discussion on specialty advisory pharmacies in a PH patient's life. Colleen is currently a holistic health coach and helps busy families and professionals reach their personal health goals through an integrative approach involving nutrition and life balance. She also specializes in food allergy/intolerance management and special diets for special kids.
Sandee Lombardi, RN, is a member of the PHA Specialty Pharmacy Advisory Board. With more than 25 years of experience in pulmonary and critical care, Ms. Lombardi has worked for Accredo Health Services, where she taught patients who have pulmonary arterial hypertension (PAH) about Flolan and Remodulin home therapy. For the past 9 years, Ms. Lombardi has been the Clinical Care Coordinator for the University of California, San Diego Pulmonary Hypertension Program, which is a national referral center and internationally recognized as a center of excellence in the diagnosis and management of adults with PAH. Ms. Lombardi also interacts extensively with case managers and insurance companies in getting approval for PAH medications. She is the sub-investigator in multiple clinical trials involving the treatment of PAH and the impact of the disease on the patient and family.
Katie Kroner is PHA’s Director of Advocacy and Awareness, Katie helps represent the PH community in conversations with the National Institutes of Health, Food and Drug Administration and other agencies. She works closely with PHA’s Washington Representative and Grassroots Campaigns Manager to build legislative support for the Pulmonary Hypertension Research and Diagnosis Act.