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Diagnosis & Treatment

The Early Diagnosis Campaign: Sometimes It’s PH

Goal: Reduce the time from symptom onset to accurate diagnosis of pulmonary hypertension by right heart catheterization

For the past 20 years, the median duration from symptom onset to confirmed diagnosis by right heart catheterization has remained at 1.1 years for patients with pulmonary hypertension. Quite simply, we are reaching patients too late in the process, and almost three-fourths of patients have advanced PH by the time they are correctly diagnosed.

The Pulmonary Hypertension Association’s Early Diagnosis Campaign aims to reduce this gap which, for patients facing a median survival rate without treatment of 2.8 years, poses a significant barrier to patient care. Our goal is to facilitate accurate diagnosis and appropriate medical intervention early in the disease state, with the aim of improving patient outcomes.

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Improving Patient Outcomes and Early Diagnosis Webinar

Five of the nation’s leading doctors of pulmonary hypertension (PH) present groundbreaking data from the REVEAL Registry, a multicenter, observational research study of pulmonary arterial hypertension patients, about trends in PH patient care. Over 3,500 patients were enrolled in the US-based registry, making it the largest study of its kind in the world. The findings suggest that, despite a range of available therapies, patients in the United States continue to experience significant delays in diagnosis. Here, panelists discuss the urgent need for early diagnosis and the latest research-driven recommendations for improved patient outcomes.

This PH Awareness Month webinar was created in 2011 through a partnership between the Pulmonary Hypertension Association and the American Thoracic Society (ATS), in recognition of PH Week at the ATS (November 6-12).